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Posted by: Greg Lance-Watkins
DoB: 26-Jan-1946
Chepstow, NP16 7LR, Monmouthshire, United Kingdoms.
tel: 01594 - 528 337
on: http://GregLanceWatkins.Blogspot.com

All ideas and info. provided here are to be discussed with your medical professionals. I am NOT Medically trained. I have merely had this vile disease since 1998 - always use your Common Sense and seek expert medical advice.
YOU MAY FIND THE LINKS in text and in the Right Sidebar of Help.
I can NOT vouch for any external site that I may direct readers to & therefore can NOT accept any legal responsibility - this is a personal blog of that which I believe only.
I do NOT believe there are magical cures hidden from us by our medical professionals though there are without doubt cases that seem cured as if by magic. Medical knowledge of this disease is very rudimentary and research frequently profligate but pointless!
However - sticking goji berries in your ear on a moonless night or similar WILL NOT HELP - Nor will the price paid for quackery be it here OR Mexico, Brazil or China!
There are many health care professionals trying their very best with great care and compassion but perfection is a little way off!
Be Minded:
I have cancer - cancer does not have me!

"Cowards die many times before their deaths; The valiant never taste of death but once.
Of all the wonders that I yet have heard, it seems to me most strange that men should fear;
Seeing that death, a necessary end, will come when it will come". - (Julius Caesar - Act II, Scene II).

Saturday, 7 May 2011

07-May-2011 – 02:30hrs. MAU NEWPORT! Well I've Seen The Doctor!

07-May-2011 – 02:30hrs. MAU NEWPORT! Well I've Seen The Doctor!

Hi,

well having come in at about 20:00hrs. Finally all tests done cultures etc. and the results are back and FINALLY, although I knew I was doomed to stay, I have JUST seen the Doctor.

02:30hrs. and I have actually seen someone qualified in my field!

They have however finally cleared the waiting room:
A young lass who gave her name as Minna, probable Persian or Arab (actually Iraqi/Pakistanni parents), pleasant and as with all other treatment I have had she was thorough.

I gather my platelets are down to 34 – The Consultant Haematologist has been suitably woken/annoyed ;-).

The action plan is put me onto an anti biotics for the possible infection, seemingly from the mouth/teeth as clearly the imune system is somewhat stuffed and having trouble coping with the normal infections that flourish in the mouth!!!

As for transfusing, since the normal range of platlets is around 150,000 to 300,000 expressed as 150 to 300 and mine are now down to 34 the plan is to leave well alone for the rest of the night (what little exists) keeping a watching brief and then do a full set of bloods in the morning.

Once the new bloods are through then the decisions will be made!!!

Meanwhile back at the ranch and they are trying to find me a bed – that will no doubt keep half a dozen managers occupied! I gather I MAY get a bed but failing that they will put me on a trolley.

This is in the NHS where in Wales the blithering idiots in the so aptly named National ass for Wales have squandered £1Billion of health service money.

I note even the discredited half wits in the Welsh Lib. Dims. stated in their election leaflet:
Labour and Plaid are wasting a staggering £1Billion in our NHS.
They've wasted money shuffling bureaucrats around instead of focusing on the real problems.
This money should have been spent on healthcare - wasting it is a disgrace.
Not least of the stupidities has been rebadging The Gwent area NHS from the meaningless Glan Hafran Trust to the even more foolish Aneurin Bevan Trust – rebadging EVERYTHING – so just imagine the cost of that.

They have even produced an entirely new uniform for all the nurses right across Wales – they are ugly beyond belief!

Imagine a nurses uniform top that is firstly too short for the width of all too many of the nurses!

Secondly what idiot would design a nurses uniform that could ONLY be removed over the head!

This of course is prone to destroying any effort they may make to have a hair style, but far more concerning, do the idiots who designed them expect nursing staff to cut their way out and throw them away if they become contaminated with let us say blood, faeces or vomit!

Did anyone do any joined up thinking?

I am also aware that many of the nurses have found the new fabric used causes rashes.

The NHS quite clearly, like so much else in the over blown and over pasi public sector Kleptocracy of QUANGOs needs root and branch pruning reducing the useless levels of management and political nere do wells and apparatchicks by at least 50% to start with.

How can we expect a decent health service when it is dragged to its knees, not by medical requirements but management incompetence and political interferrence.

Oh well I gather I am considered quite unwell – it is astonishing that after 4 hours sleep last night I was awake at about 09:30hrs. And it is 03:00hrs. And still no bed.

The medical side jumps through all the hoops and delivers to the best of the equipment and manpower available.

Yes there ARE more managers feeding off of The NHS than there are beds – it is those excessive managers who believe that the best way to improve the service is to pay ever higher salaries, perks and pensions to managers and fund it by out sourcing basic secretarial services to Indian companies via Irish sub contractors – you couldn't make it up could you!

OK no bed is likely to be available but they can give me a trolley in the open trolley bay!

I wonder how many wards the managers have closed this weekend to fund their salaries and pension contributions.

We have decided that since bloods will probably be somewhere around 05:00hrs. to 06:00hrs. I'll stay in this consulting room and if very tired I can doze!


I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62

07-May-2011 – I've Gone Dotty! Well Legs & arms!

07-May-2011 – 01:35hrs. I've Gone Dotty! Well Legs & arms!

Hi,

well Royal Gwent here I come!

There is no hurry so although I HAD planned to go and catch up on sleep mid afternoon they do say 'Life is what gets in the way of ones plans' so make a couple of phone calls and then a shower.

I phoned my uncle/Alan as I thought if I am kept in then he just might call sometime tomorrow and might be a bit anxious if he could not get hold of me.

His biopsy at St. Thomas' was I gather unsuccessful! He said at the time they had tried several times but the tumour was in some way very hard to access, so it now seems that they failed to get a sample and they have taken almost 3 weeks to get around to letting him know! NOT CLEVER with an 83 year old as it is clearly bound to worry them as breaks in routine and fear play a larger than life role in life.

Alan is being very stoic about it but clearly he is worried on Brenda's behalf – after 60 years together that is hardly surprising especially as Brenda has had more than her fair share of health concerns over the last few years.

Another factor is their concern for Derek – Paula's Father as I gather all is not well and I gather he and his wife Babs are feeling a bit dispirited at the moment.

Back to Alan and I gather since St. Thomas' failed to get his biopsy they are going to have another go at his local hospital!!

Well I've made the needed calls.

A quick shower and off to The Gwent MAU (Medical Assesment Unit) to wave my Yellow card about! I must run a scan for your amusement when I get home – it is little wonder they are so helpful as it gives the impression that if I have presented and it is Velindre authorised I could fall over dead at a moments notice ;-) NOT to be read by the faint hearted!

Lee came down with me and I'm half pleased she did but the MAU was a complete zoo with waiting time on a forever basis – they were really good to us and I was given one of the consulting rooms to try to isolate me from other patients and avoid any risk of my being infected.

Every seat in the waiting area was in use and when we arrived one poor woman was bemoaning the fact that she had been waiting since 13:30hrs. And it was 20:20hrs.!

To be fair this is just a matter of bad management as when I came in on Bank Holiday Monday it was near empty!

It took about an hour for my bloods to be taken +ECG, BP (Blood Pressure) etc. then the long wait for the labs which rarely is under 1.1/2hrs. And will be more than 2 tonight at a guess!

Then there was a snag and they needed another batch of blood to use to do a culture – I get the impression they may have called Velindre.


Eventually at 00:50hrs. I'm told that I do have a slight infection showing in the blood which will have to be treated with an intraveinous drip, so I have to stay in – as yet as I haven't actually seen a Doctor yet they are not sure if I will need a transfussion as well!

Poor Lee she looked so upset, she is so very scared for me but as yet to me it is just another bloody challenge – she is also VERY nervous at driving home alone – since we have been together almost 24/7 for 26 years although her driving is perfectly alright she has not driven anywhere alone on her own – yes with friends in the car or me in the car but not alone!

She is convinced something will go wrong and just as she is leaving she realises her mobile has gone flat! Well 01:00hrs. On a Friday night in Newport is probably her best time to start there is little or no sign of traffic about – Yes of course I'm nervous on her behalf but I have every confidence in her.

Knowing one isn't fit enough to FIX things at the moment makes me nervous. Never before in my life have I not been master of the situation – how soon we forget ;-p Yeah Ok my nephrectomy was a bit daunting but I was 10 years younger and as it was a first I KNEW I was goint to beat the demon!

Then I never felt ILL yep frail from being cut in half but not ILL – this time around there is no doubt I feel those 10 years acutely and the relentless stress of cancer day in day out is wearing, however well one might be coping with it.

This time they are pumping my body full of Cytotoxic* chemicals and taking one to the brink – not knowing what the next symptom will be on the road to winning is naturally daunting!

I am now waiting for a bed and being set up on the drips – Lets hope they can balance me up so that I am OK to take both Carboplatin* & Gemcitabine* on Wednesday when next scheduled!

Mean while don't mind me being worried Lee has got home OK.

*: these can be looked up in the Right Sidebar under the Hotlinks

Any detail you need do try the SEARCH at the top of The Right Sidebar.


I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
Enhanced by Zemanta

Friday, 6 May 2011

06-May-2011 - I've Sprung A Leak & Gone Dotty! (PETECHIAE)

06-May-2011 - I've Sprung A Leak & Gone Dotty! (PETECHIAE)


Hi,

with the election on and waiting to see if by some outright fluke UKIP might get a seat in The National Ass for Wales I eventually trundled off to bed (not remotely tired!) at about 04:30hrs.

I was awake at 09:30hrs. Woken by my mouth now just as the Ulcers are clearing a bit the molars on the left seem to consider a bit of infection top and bottom might be fun!

I gave up on the idea of sleep and went back to the computer!

Lee surfaced sometime later and did her normal dash around – new ink for the laser printer to pick up from Maxine's – delivery there is always easier!

Then she had to go to the Post Office and pick up some forms – then to see James to sort some gas.

Then a quick panic to catch Boots for the prescription only to find the the pharmacist in a grump and no sign of the prescription I arranged for last night!!

I just managed to catch the surgery and they were very helpful as they had not put it theough in time for the Boots collection!

Eventually the Scrip was phoned through paperwork to follow and when Lee went up to collect the Pharmasist had had a personality change and was chatty and helpful – Strange.

Whist she was dashing about I raided the fridge and subsequent events make that a happy accident!

Having eaten and now with an ample supply of mouth wash and deadener I thought I was OK for the weekend and with Clinic on monday all was well until I looked at my legs! Fortunately I was still wearing a dressing gown!

I was just off for a shower and looked at my legs!!!!!!!!!!!!

I have large areas of pin prick rash under the skin – looks to me as if my platelettes have dropped further and I'm getting some kind of leakage from the capillaries – what know I, but since I was told to ring the help line if in doubt - this registers as doubt.

Icalled Velindre duty pager chemo. She was not prepared to reach a decision without checking with the duty Doctor as the symptoms do indicate a possible fall in platelettes.

Dr. called back and wants my bloods checked! I was on 45 for plateletts, Wednesday week ago, when I last had chemo. 

On Monday when my temperature was high I had been down to 43(000) although these readings are very low considering normal range starts at 150 to 300! Actually I gather one has 150,000 to 300,000 platlets per ?

My low levels are within the peramaters expected, I understand – much lower would start to concern!

I gather the condition (symptom) is known as PETECHIAE

I just want to be certain they are OK and all my counts etc. are OK to pump more of the loverly Carboplatin & Gemcitabine that is due next Wednesday!

When you have cancer you make chemo. Your friend as it is only trying to help – even if it does tend to beat you around a bit – the enemy is the cancer not the chemo!

Hard at times to be convinced the drugs that make you feel rotten are the only deterrent to the cancer and without the drugs AND the side effects the outcome becomes inevitable!



I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
 Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
Enhanced by Zemanta

05-May-2011 - Jaded?! of Ulcers & Abdomens!

05-May-2011 - Jaded?! of Ulcers & Abdomens!
Hi,

well today has been a bit of a muddle!

Lee couldn't sleep so she was still in the office when I went to bed but there was one advantage – she managed to get my sound working on the main computer.

I felt really grotty when I got up but then again it was 13:00hrs. Lee was still fast asleep – so I stumbled off to the office to catch up on the blogospher – didn't much feel like making the phone calls I had planned as I was feeling jaded, nothing worse.

Pain across the lower abdomen (to exagerate a feeling / mild awareness) but I'm still unconvinced it is a side effect, the fact that firstly my diet has changed and there is no doubt I am swallowing more air when I eat due to the mouth ulcers.

I must say I am starting to get the hang of when to use the mouth wash - the Difflam Oral Rinse (Benzydamine hydrochloride) is far from sophisticated! If you take 5ml. 30, 20 & 10 minutes before eating it is so deadens the mouth that the ulcers although largely raw they only give discomfort rather than pain when you swallow even eating!!

Details of Mouth Ulcers and dealing with them can be found if you go to the Right Sidebar hotlinks.


I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
Enhanced by Zemanta

Tuesday, 3 May 2011

03-May-2011-20:30hrs. - I Must TRY To UPDATE GOOD NEWS TOO!

03-May-2011-20:30hrs. - I Must TRY To UPDATE GOOD NEWS TOO!

Hi,

I really must make more effort to update when my location changes as Roger had been reading the blog and Anne phoned thinking she would be speaking to Lee as I was still seemingly in hospital.

Mea Culpa – I was out again and had not caught up so she was quite surprised when I answered the phone!

Anyway it was really great that knowing I was in hospital or at least having read the blog and thought I was still there Anne and a couple of others called up to offer Lee support – Thanks, it really is a great help for both of us.

Roger is back on Sutent but this time the dose is down to 37.5 as 50 had just made him too ill – this time to their relief his system seems to be controlling the side effects a bit better. The normal fatigue but not the more extreme manifestations he had during the last cycle on 50mg. Dosage which he had been forced to abandon.

Roger has picked up an error in my brief comments on his Cancer Trail as it started NOT with RCC but with Prostate Cancer and what seemed to be a very successful radical prostetectomy. There was every reason to believe that he was in the clear.

Then a completely new round started with RCC this time but he has promised to write up his details rather better for me and I'll include them on a link on this blog.

Check out the Hot Links in the Right sidebar for more details or use The SEARCH BOX at the top of the sidebar.

Anyway – yes I'm back home and my thanks to Anne and others for their calls of support.



I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
. If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order. . Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way. .
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
Enhanced by Zemanta

Monday, 2 May 2011

02-May-2011- DAMN - My Temp. is UP 37.5C

02-May-2011- DAMN - My Temp. is UP 37.5C

Hi,

I know I wasn't feeling too chipper but I stayed up to listen to Obama's speech on Osama Bin Laden which was at 04:30hrs.

Could this be why the William & Kate honeymoon was cancelled? Did America give a heads up this event was going down as I had heard they planned to go to an exclusive venue in Jordan.

Whatever - felt lousy when I surfaced and had a tummy ache and also a temp. of 37.5C and my little booklet tells me to phone in to chemo >pager< at Velindre if I have a temp. of 37.5C or above.

So I called and gave my symptoms and all seems NO PANIC BUT!

The concern is that I may have a slight infection, possibly oral, as I have mouth ulcers and the concern is that I may be neutropenic (long word for low white blood cell count).

So its me for a quick shower - throw some clothes on and trundle down to the Gwent for a blood check in MSU (Medical Support Unit).

The tummy ache is still there but Sam (chemo sister) thinks that may be delayed reaction to last week's chemo.

I have to take an overnight bag as they may need to put me on a drip - I am not looking forward to explaining this to Lee as she will be bound to be worried.


Oh well off for a shower - This may be the first variance but I'm sure it won't be the last - they might even give me something for the apparent temperature induced head ache!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62

Friday, 29 April 2011

29-Apr-2011 - THE Wedding

29-Apr-2011 - THE Wedding

Hi,

I'm afraid although I saw the occasional snipet which was brilliantly done, I took little notice and Lee went to Rachel's to watch the pageantry.

My mouth is still saw but if that is the price of treatment I'll cope!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62

Thursday, 28 April 2011

28-Apr-2011 - St. DAVID's NURSING aka MacMILLAN

28-Apr-2011 - St. DAVID's NURSING aka MacMILLAN

Hi,

well having stumbled off to bed this morning at 10 to 7 around 10:50hrs. I woke up with a sore mouth and really horrid tummy ache - I can't work out whether the stomach ache is some sort of side effect or maybe just a product of swallowing too much air with my ffod as I gulpped it being unable to chew or swallow properly - either way it wasn't until the following evening that it finally stopped being a pain!

I malingered and felt sorry for myself in bed until about 12:30hrs. when I heard Lee doing something in the kitchen - I am so restless she has given up trying to sleep in our bed and usually when I wake up she has slid off to sleep in peace and comfort without being kicked and elbowed and is in the spare bedroom - who can blame her.

Yeah, Yeah, Yeah those thoughts ill become you!

I got up chucked my 2nd. dose of mouth wash for the morning in and swished it about for the required 3 minutes! The instructions on that bottle say take 15ml. and swish around the mouth for 3 minutes - one wonders if the chap who wrote the instructions had ever tried it with mouth ulcers - 10ml. is no problem but with mouth ulcers the second you put 0.2% solution of CHLORHEXIDINE GLUCONATE in your mouth the saliva glands go into overdrive!

OK so after about 1 minute it seems like you have at least a cup full in your mouth and after 2 minutes you have no choice but to spit some out!

Then off to the office - about an hour later the phone goes and it is Nairn from St. David's Nursing they largely fill the role in Monmouthshire and Wales of MacMillan Nursing in England - she is just down the road and can she pop in.

PANIC - I'm still in a dressing gown so Lee meets her and I throw some clothes on!

I remember Nairn clearly when I see her, as I had meetings with her when Lee's Mother had Brain Cancer and during those 3 cruel months.

We sat outside on the bench for a while chatting, although I'm not meant to go in the sun, yet another side effect of chemo!

Nairn went through the various ways she could assist Lee and I during this battle and it is surprising what doors she can instantly open.

The main thing from my point of view is the knowledge that Lee now has a competent support situation if I do suddenly get ill in the battle, and they will help her through it until I recover.

I've managed to beat this bastard disease4 for 13 years and just 'cos the Book Makers only offer 5-15% survival if people only backed certainties the entire racing business would collapse!

We don't expect it to be easy but over the last 13 years with Lee's Mother, both my parents and my Aunt all having far from simple deaths we really don't expect easy! Also we know so many people who have been in contact with me as a result of the help line I have offered both sufferers, fighters and carers not least of whom was our good friends Rosemarie and Peter and the cruel and savage death of Peter from Prostate cancer at 60 just as they were both about to retire.

My parents house keeper and help Pat is battling at the moment and she has served the family for about 30 years - her husband was doing some part time building for Lee and I and put a new flat roof on my parent's house for us and suddenly in the middle of another job, just before Christmas he developed a cancer on his neck which he was firstly treated with chemo for but it wasn't too wonderful and so he finished a course of radio therapy just a fortnight ago and we are all keeping our fingers crossed.

Then of course there is Robin who had a radical prostectomy and has regular treatment now to try to control his metateses! We chat on the phone regularly and take the mickey out of our respective situations.

Then there is Roger who we have known for 30 years and he has so far lost a kidney, an adrenal gland, some intestine and half his liver to RCC (Renal Cell Carcinoma) he is struggling his way through his 2nd. or 3rd. course of Sutent under the same specialist as I am at Velindre.

Then there is Stuart Archer and having beaten bowel cancer once it has come raging back and his chemo is beating him about harshly and although he knows his prognosis is not good he is fighting it all the way with hopes for further treatments if this round of chemo lets him down.

Just to add to it there is Alan - my Father's younger brother who was fast losing his voice and they have now found a lump on his lung which was crushing the nerve to the vocal chord - at 83 he is fairly pragmatic about it but all too well aware that Brenda could not cope if he was incapacitated and their only son is now an American citizen as he and his wife Paula (whose Father has cancer) live in West Virginia.


I guess Cancer burst into my life with my cousin John who died after an 11 year battle when he was only in his early 50s 15-Jul-1994 and I guess the next was Mike Slinn and so on and on and on!

Would it be fair to say there does seem to be a lot of it about!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way. .
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
Enhanced by Zemanta

28-Apr-2011 - CLOCKS ARE FOR OTHER PEOPLE

28-Apr-2011 - CLOCKS ARE FOR OTHER PEOPLE

Hi,

I appreciate that chemo has strange effects on people but all it seems to have done so far is break my circadian clock and given me horrid mouth ulcers!

Sorry I memtion the mouth ulcers all the time as it is hard to acoid their omni presence and I'm very conscious of how hard Lee tries to produce palatable food - it must be so demoralising for her to go to all the trouble and then watch me with tears rolling down my face with the discomfort as I struggle to eat the food taking well over an hour for the simplest of food.

I am however determined to eat every last morsel put in front of me both out of respect for her efforts and also as I am aware there may come a time when I am too ill to eat and I will need the help of food eaten now to get through that battle and recover the other side.

After chemo yesterday I was feeling bushed but needed to catch up on my 'e'Mails and a few phone calls and also read up the papers on the computer so I did that whilst Lee made an early dinner. Gammon steak cut into tiny weenie pieces, mashed potatoe, brocolli and eggs - Lovelly Jubbly even with regard to all the razor blades in it!!!

The strange thing was after just over an hour struggling through that I was wide awake!

No that is an understatement - I was completely wired and it was not until 06:50hrs. that I went to bed!

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62

Wednesday, 27 April 2011

27-Apr-2011 - 14:00hrs. Velindre CHEMO TREATMENT

27-Apr-2011 - 14:00hrs. Velindre CHEMO TREATMENT

Hi,

lunch was pleasant in the canteen which is just across the driveway from the CDU cardboard box so when the time came I wandered in to be plugged up with no waiting time.

The chemo nurse was brilliant as she had made me up a prescription for yet more mouth washes for the Mouth Ulcers, with much reassurance that they would have me eating toast in no time!!! She lies so charmingly ;-)

As we came in she asked Lee if she would mind taking the prescriptions around to the pharmacy which she was good enough to do - I gather it is a VERY busy pharmacy and prone to major glitches due to under manning - as ever management seem unable to get the logistics right on staffing or 'kit', much too busy on ego projects squanderring money that should be spent on the core service on footling politically correct stupidities and rebadging to make childish points!

Well this time it was into the chair and a cannula in the left hand - I just have this feeling that if they manage to damage a hand, nerve whatever I am much better off with it being the left hand - I am VERY non ambidextrous!

Fortunately needles never seem to be a problem with me and very rarely are they painful or bleed (Well So Far!).

A quick proving sluice into the vein of saline solution and then the bag is switched to the gemcitabine which is the chemo drug with the saline carrier where as the carboplatin is using a glucose carrier and is light sensative. So just the gemcitabine this time which was over fairly rapidly (about 40 minutes).

Whilst the last of the gemcitabine was being run in the sister kindly rang up Dr. Lester's secretary for me as I had a request!!!

I would like copies of my skeletal bone scan and the precedingCT Scan - surprisingly in all the years she has been working at Velindre apparently no one has ever asked for them!

I explained that I wanted to put them onto my blog so that people could see exactly what I am talking about - it is easy to put 'similar' examples from medical texts and the internet up but I thought my own would be more informative.

She has promised to give Neville Hall in Abergavenny, who hold the CT Scan, a call and Janet at The Royal Gwent in Newport who have the bone scan also to ensure there are no protocol problems.

Janet has already told me there are no problems fr4om her end - after 13 years dealing with me she has got used to me having odd requests ;-)

just as that call finished Lee returned with her tales of woe and confussion from pharmacy where every muddle conceivable seemed to be taking place with quite ill people waiting for an age before they could start their journeys home.

Whilst Lee told me of pharmacy the nurse washed out the vein with saline and disconnected me removing the cannula.

Free to go!

Although the treatment took quite a while - well from about 11:00hrs to gone 15:30hrs. there were no glitches.

Well that was my third visit to velindre and my second chemo over and I really must comment just how cheery the staff are - neither Lee nor I have run into a single staff member who hasn't been prepared to go that extra 9 yards to help. Not knowing our way around the hospital every time you ask for directions they don't just point nebulously and send you on your way they always lead you to the next junction and show you which corridor to take, with a smile.

So very much better than hospitals like The Gwent which have become huge, impersonal, intimidating and not to mention filthy!

On the way home we stopped off at Boots pharmacy in Chepstow where they had been unable to fill one of my prescriptions before we left this morning, we stopped off for a bit of shopping and I parked the car and by the time I had sat down for a coffe I was on the verge of nodding off again!!

I am increasingly noticing waves of tiredness - fortunately Lee and I have no consequential time commitments other than the regular hospital visits so I tend to sleep if I need to.

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
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Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62