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Posted by: Greg Lance-Watkins
DoB: 26-Jan-1946
Chepstow, NP16 7LR, Monmouthshire, United Kingdoms.
tel: 01594 - 528 337
on: http://GregLanceWatkins.Blogspot.com

All ideas and info. provided here are to be discussed with your medical professionals. I am NOT Medically trained. I have merely had this vile disease since 1998 - always use your Common Sense and seek expert medical advice.
YOU MAY FIND THE LINKS in text and in the Right Sidebar of Help.
I can NOT vouch for any external site that I may direct readers to & therefore can NOT accept any legal responsibility - this is a personal blog of that which I believe only.
I do NOT believe there are magical cures hidden from us by our medical professionals though there are without doubt cases that seem cured as if by magic. Medical knowledge of this disease is very rudimentary and research frequently profligate but pointless!
However - sticking goji berries in your ear on a moonless night or similar WILL NOT HELP - Nor will the price paid for quackery be it here OR Mexico, Brazil or China!
There are many health care professionals trying their very best with great care and compassion but perfection is a little way off!
Be Minded:
I have cancer - cancer does not have me!

"Cowards die many times before their deaths; The valiant never taste of death but once.
Of all the wonders that I yet have heard, it seems to me most strange that men should fear;
Seeing that death, a necessary end, will come when it will come". - (Julius Caesar - Act II, Scene II).

Tuesday 26 July 2011

Brynglas Tunnel Fire Does Little to Help! 26-07-2011

Brynglas Tunnel Fire Does Little to Help! 26-07-2011
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Hi,

routine as it has become schlepping up and down the M4 Chepstow to Velindre every day it is still 70 miles round trip and VERY boring.

Today was somewhat different but the bore turned out to be rather longer than most days!

With the radio burbling on in the background this morning I heard an announcement there was a lorry on fire in The Brynglas Tunnel west bound and explosions had been heard

These two tunnels, east and west bound where each 3 lane of the M4 motorway narrows to pass through the two lane pinch point - originally designed to solve congestion in Newport and handle through traffic they were opened in 1967 - Much has happened since!

There can be few who use these tunnels regularly who can not have hoped for a moment that the explosions had be large enough to destabilise the hill the tunnels burrow under, forcing the removal of a sector of the hill to expand the facility of the M4 beyond these two ill planned tunnels.

Here is someone I know who has done several interviews and programmes I've been involved in on TV. He too was caught in the traffic and here he is chatting on video about the problems CLICK HERE
With an appointment scheduled for 15:00hrs. I rang LA3 at Velindre and spoke to Stephan - he said they were handling appointments as they could but not to worry if I was late as the staff would stay on until EVERYONE had had their treatment, which was very reassuring.

I rang at 13:10hrs. and normally the journey takes from 35 to 40 minutes BUT TODAY!!!!

I set out at 13:25hrs. and finally arrived after going through the lanes across Redwick, Goldcrest etc. to Nash - not really knowing where I was much of the time - then into the snarl up in Newport which was total gridlock - I eventually arrived in Velindre at 15:40hrs.

Over 2 hours to travel 35 miles!

I received my 57 seconds of ZAP on the machine and then set out home again at about 16:20hrs. - this time I headed north towards Merthyr Tydfal and cut across the valleys to Usk where by now it was18:30hrs. so I stopped off for coffee with friends and eventually arrived home at 20:35hrs.

I must say I find doing this every day a bit daunting!

However I must say the staff at Velindre have been brilliant and have reshuffled appointments and tried to keep no one waiting - in fact I was, with the consent of all the others waiting, bumped up the list and dealt with almost immediately in the light of how much travelling was involved.

Thank you to anyone I delayed and a big thanks to the efficiency of the staff.
 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide
To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I'M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
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Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
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YOU are welcome to call me if you believe I can help in ANY way. .

Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
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Tuesday 12 July 2011

A Type of Linear Accelerator (Radio Therapy Machine) 12-Jul-2011

A Type of Linear Accelerator (Radio Therapy Machine) 12-Jul-2011

Varian radiation therapy machineImage by IndyDina with Mr. Wonderful via Flickr

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Hi,
I'm just about to leap in the shower and then it is off to Velindre - YET AGAIN - for the next dose of Radio Therapy.
I'll try and write up yesterday and today when I get back but yesterday I stood no chance of coherence after a trash night sleep wondering if the alarm would wake me! Then up at 07:00hrs. and uncertain what rush hour traffic would be like.

Anyway must dash 13:40hrs.!
 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I'M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
on: http://GregLanceWatkins.Blogspot.com TWITTER: Greg_LW Health/Cancer Blog: http://GregLW.blogspot.com  
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Monday 11 July 2011

RADIO THERAPY (LinAc) Day ONE! - 11-Jul-2011

RADIO THERAPY (LinAc) Day ONE! - 11-Jul-2011
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Hi,

I was quite glad we had arrived early - we had expected rush hour traffic but it seems few people work in South Wales! There were no appreciable build ups of traffic either as we drove past Newport on The M4 nor as we drove on to The Bryn Glas Tunnel and on past Cardiff at around the speed limit almost all of the way - unimpeded by people on their way to work!

Then on to exit 32 and into WhitChurch and Velindre.

The procedure once checked in was to wait in the waiting room of the Machine one is calibrated to! In my case LA3.

The Linear Accelerator is a large piece of equipment with a large price tag of between £1.2 & 1.5 Million + the cost of installation maintenance and a hands on crew of 3 in a spacious and well lit room.

As you wait in the waiting room it is clear many of the patients are regulars and know eachother as they sit there with their issue blue plastic bags as slippers! This is designed, I understand, to track the minimum of outside contaminant into the machine area.

Also it soon becomes clear that dependent on what exact location is being zapped whether you are a drinker or a pee-er! I gather people with prostate cancer being zapped have to drink a certain amount of water before their treatment whereas I with a tumour on the uretal stub on the bladder am expected to empty my bladder as much as I can.

These different perfomances to order are designed to ensure that each treatment the organ concerned will be the same size and position!

The machine or should I more kindly call it an instrument is similar to this one but different!! Though it is made by Elektra:
The gantry itself rotated as do the individual heads as the bed liftf and lowers and moved in the lateral plane to get positioning spot on.

Then it is onto the metal monster (well plastic coated) where one is positioned EXACTLY and the three tattoos from assesment last week are lined up with the lasers  (one on each hip approx on the joint and the third on the pubic bone). Positioning is and needs to be very precise and then a scan is done to identify excatly where the tumour is.
The large Accelerator head is then swung through various positions to take exact measurements befor the 3 operators withdraw to safety and out of the room whilst you are left on the table in exactly the right position for the accelerated particles to be fired through me.

In my case my oncologist has decided the dosage (length of bombardment) and direction, which is 3 positions of the beam/particle accelerator one from aboveslightly obliquely and two from the left side at different angles.

I presume the oblique is to avoid the particles passing through the spine on the way out!

The beam of accelerated particles continues from each position for between 15 & 28 seconds it seems - thereby determining the dose or for that matter damage done!

The Particles enter the body and pass out the other side, I gather doing damage all the way through, so on any one visit a straight line of damage is done through 3 lines but each passes through the tumour. Next visit the beam will pass through 3 slightly different lines but every time Zapping the tumour.

There is no pain sensation in fact the only giveaway the machine is on is that everyone legs it out of the room and one has a David Howarth moment; I hope you have read the WWII epic of survival 'We Die Alone' which he wrote or that comment will make little sense!

Also as the ray actually fires the machine makes a noise similar to an electrical shorting of a cable.

The whole procedure takes only a few minutes and there is no realisation that it has been done!

Then it is clamber off the machine, in my case due to having lost all my stomach muscles and nerve instructions in 2001 due to the operation, subsequent MRSA infection of the wound and gross hernia of the wound - the staff help me back to a sitting position.

Then cheery chats and 'see you tomorrows' and back onto The M4 for the 70+ mile round trip. Remembering to take ones blue plastic bag slippers with one!
 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I'M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
on: http://GregLanceWatkins.Blogspot.com
TWITTER: Greg_LW  
Health/Cancer Blog: http://GregLW.blogspot.com  
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Monday morning & ready to be ZAPPED

Monday morning & ready to be ZAPPED
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Hi,

the treatment was due at 09:30hrs. which was somewhat tedious as I'm far from a morning person!

I was also unaware of the traffic load I could expect with the potential of rush hour and busy business traffic - fortunately it seems few people in Newport or Cardiff would seem to work in view of the fact that the traffic levels were much the same as normal.

We were very early so we went for a coffee at the canteen first (the coffee and snaks in the canteen are very good value).

I checked in at 09:15hrs. and was taken to the waiting room for the machine I am booked to LA3 (Linear Accelerator number 3).
 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I'M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.
.
You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
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Monday 11-Jul-2011 Back on the Tread Mill with RADIO THERAPY

Monday 11-Jul-2011 Back on the Tread Mill with RADIO THERAPY
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Hi,

it is almost 01:00hrs. and I still haven't made it to bed!

We had lunch with G&C at C's and then Lee & C wanted some 'stuff' at the garden center so we went there on the way home to a backlog of 'e'Mails from friends etc. and several missed phone calls.


Now, as I have to be up at just after 07:00hrs. to leave just before 08:00hrs. to face 35 miles on The M4 at that time of day when the Bryn Glas Tunnel seems always to be busy as 3 lanes are squeezed through 2!


We have to be at Velindre by 09:15hrs. so off to bed I go!


(probably to keep waking up to check the alarm clock!
 .
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I'M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me
I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
. If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order. . Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way. .
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
on: http://GregLanceWatkins.Blogspot.com TWITTER: Greg_LW Health/Cancer Blog: http://GregLW.blogspot.com  
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Monday 4 July 2011

SKELETAL SCANS! - My Haloween Portrait?

SKELETAL SCANS! - My Haloween Portrait? 
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Hi,

I guess not many people's blogs have a full frontal (Anterior) and rear (Posterior) picture of the blogger without clothes.

What a relief it is a skeletal scan rather than a normal photograph!

I gather this shows no signs of cancer in the bones nor signs of gross tumours elsewhere. It was a huge relief when I was declared 'bone sound'! It is not a deffinite repriev but it is not the death sentence it might have been.

NEDM - No Evidence of Distant Metastases.

For the fuller write up of when the scan was done CLICK HERE

04-Apr-2011 - 10:10hrs? - Royal Gwent - Full Body Bone Scan
Be in for 09:30hrs. pick up bloods sheet from urology & see phlebotomy FIRST - the Radiography for the full skeletal scan on a machine quite like this:

.
NOTE:
The shadow of the remaining kidney on the Right side.
The massive hernia to Left abdomen
The skeletal distortion due to hernia.
.
NOTE:
This is the same Anterior image but on a 'Pulse' setting! Yeah, I'm not sure what the settings are/mean but when I find out I'll add it in!
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NOTE:
The remaining Right Kidney shows up much better on this scan where it is closer to the back than front.
You can also see the spinal deformity due to the very visible Left side hernia.
.
NOTE:
This is the same Posterior image but on a 'Pulse' setting! Yeah, I'm not sure what the settings are/mean but when I find out I'll add it in!
 
On this setting various new things become visible - I'm not sure I will guess them right but I'll have a go and obviously my hard core medical info. is subject to correction by someone who knows what they are talking about - rather than my semie informed guesses in this instance!
Mid thorax there is a puzzling anomaly which had everyone guessing for a while but after further XRays on another machine it was decided the strangely vacant area was probably some long past injury but was NOT thought to be cancerous, malignant or threatening (I got the impression no one quite knows what has caused it!

Moving down I believe that the 'flares' just above the bladder may well be Lymph Nodes that are enlarged, cancerous and necrotic (But I'm not sure!). I may be entirely wrong as on the previous pic. the two flares seem to be aligned with a part of the pelvis!

Then there is a 'flare on the outer left of the bladder upper which would seem to be the uretal stump which has become cancerous and is the current primary that must be 'zapped' (Medical term for can we kill it before we kill the patient!!

CAVEAT & REQUEST!
Anyone who can throw further light on these scans on a professional basis in lay/patient language would be much appreciated.

Do please send me an 'e'mail and I will OBVIOUSLY protect your professional identity if you so wish.

Thank you and I'm sure those reading this blog will appreciate any help you can give, particularly corrections and developement of my comments!
.
 Please Be Sure To
My Blogs
To Spread The Facts World Wide To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I'M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
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The NHS Traduced by Life Style Treatments & Political ambitions!

The NHS Traduced by Life Style Treatments & Political ambitions!
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Hi,

many will appreciate why the NHS lacks the needed capacity for scanners and has bottle necks in areas like Radiology and MAU Units, delays in A&E, filthy hospitals, parked ambulances with patients in, delays in surgery, late or inefficient diagnosis and a plethora of Hospital acquired diseases!.

How many of you reading this who are facing a potential death sentence or may do in the future are doing so because of the abuse of The NHS largely on political grounds - either to use it as a dump for the unemployable in its many parasitic QUANGOs, or as with Wales where the management have clearly stated that they have squandered over £1Billion of a £5Billion budget CLICK HERE or to provide lifestyle choices for the selfish at the expense of the lives of others as in the article below: 

What have the breeding choices of foreigners to do with NATIONAL HEALTH - for that matter why are we spending money on breeding choices and lifestyle choices as a part of HEALTH Services when people are dying due to lack of Radiography facilities and MILLIONS of hours are wasted at huge cost in waiting rooms for lack of phlebotomists or technicians in labs. there is clearly no shortage of parasites in the Kleptocratic QUANGOcracy.

By no means is 'breeding' at the expense of the lives of the dying a 'basic human right' when the money used to indulge these whims could be better spent on funding the equipment and staff for early diagnosis - that WOULD save lives!

Milking of the health service: NHS pays £200k bill for Nigerian health tourist's five babies and provides free IVF for single mother, 39

Last updated at 10:08 AM on 4th July 2011
Two mothers who gave birth on the NHS in extraordinary circumstances have provoked a furious ethical row.
The first case centres on a British 39-year-old who had a £4,000 cycle of IVF funded by the taxpayer after she claimed it was her ‘human right’ to receive it.
Her son will grow up without a father.
'I want to inspire other single women to do what I did': Elizabeth Pearce with her baby son Leo
'I want to inspire other single women to do what I did': Elizabeth Pearce with her baby son Leo
The second case relates to a Nigerian who flew to Britain purely to give birth to quintuplets conceived in Africa after she swallowed a course of high-dose fertility tablets.
Her bill to the taxpayer is already £200,000 and she is fighting Home Office moves to return her to her home country.
MPs and campaigners say an apparent fertility free-for-all is unacceptable at a time when the NHS is under unprecedented financial pressure.
Hospitals are already slashing their budgets amid clear signs that waiting times are rising, optional treatments are being cut back and some members of staff face redundancy.
Emma Boon, of the TaxPayers’ Alliance, said: ‘With such huge pressures in the NHS budget, taxpayers’ money should be going towards front-line healthcare, lifesaving treatments and helping sick people get better.
Homerton University Hospital in East London, where the Nigerian woman gave birth to quintuplets
Homerton University Hospital in East London, where Bimbo Ayelabola gave birth to quintuplets
‘Difficult choices have to be made but when taxpayers’ money is tight, the public will question whether those sorts of treatments should be paid for.’
The IVF row has been sparked by former personal assistant Elizabeth Pearce. The 39-year-old had been turned away three times by her local PCT in Ealing, West London which said that as she was not in a relationship, she did ‘not meet the criteria’.
But last year they threw in the towel after Miss Pearce, who is unemployed and on benefits, threatened the trust with legal action claiming they were breaching her ‘basic human rights’.

‘Difficult choices have to be made but when taxpayers’ money is tight, the public will question whether those sorts of treatments should be paid for.’

She was given one cycle of IVF, which costs between £4,000 and £8,000, using sperm from a donor in the U.S. she had paid for herself. The treatment was successful and in January she gave birth to her son, Leo.
Miss Pearce, now living in Canterbury, was able to get IVF on the NHS thanks to a change in the law in 2008. This stated that health trusts no longer had to take child’s need for a father into account when considering treatment.
It means lesbian couples and single mothers are all entitled to treatment as long as they can demonstrate they will provide ‘supportive parenting’.
But the PCT’s decision to pay for her treatment will be seen as highly controversial as thousands of infertile, married couples desperate for children are routinely refused funding.
A report by MPs earlier this year revealed that at least five cash strapped PCTs have stopped funding IVF completely.
And three quarters of the 152 PCTs in England and Wales  pay for only one cycle of treatment, even though NHS  guidelines state that a woman should be offered three to maximise her chances of becoming pregnant.
Wrong choice: MP Nadine Dorries says taxpayers should not have to foot the bill for Miss Pearce's 'lifestyle choice'
Wrong choice: MP Nadine Dorries says taxpayers should not have to foot the bill for Miss Pearce's 'lifestyle choice'
Tory MP Nadine Dorries said: ‘I’m not sure that taxpayers’ money should be used to fund the lifestyle choices for this particular individual. There are many couples who are desperate to have children who are failing.
‘I think taxpayers would be happy to pay for these sorts of people.
‘But in this harsh economic climate taxpayers will have something to say about their money being used to fund someone’s lifestyle choice.’
Stephen Davies, a GP in  Sheffield and spokesman for the British Fertility Society, said: ‘I don’t have a problem with  this lady getting IVF. But I  don’t think she should have  got funding if it would be denied to other ladies in similar positions.
‘She would have been denied funding in Sheffield. The lack of uniformity is a scandal. I had  one couple the other week  who moved house, eight miles, and lost a whole cycle of funding.’
Josephine Quintavalle, of the Comment on Reproductive Ethics pressure group said: ‘Every child has the right to have a father. ‘Allowing single women IVF treatment on the NHS says more about the wishes of an adult than the rights of children.
‘I think it’s extraordinary with healthcare allocation being under such pressure that decisions are being made to go ahead with IVF in this way.’
The second case is an extraordinary example of so-called ‘health tourism’ involving 33-year-old Bimbo Ayelabola, who flew to England last December from Nigeria after discovering she was pregnant.
She gave birth prematurely via caesarean to quintuplets in  Homerton hospital, East London in April.
The cost of her treatment and the care for her five babies on a neonatal unit will be close to £200,000.
As a Nigerian national she is not eligible to free treatment on the NHS but it is highly unlikely she will ever pay back the money.
She is currently staying at her sister’s home in East London and has instructed lawyers to try to extend her visitor’s visa.
Airport officials say they see dozens of women passing through Britain’s borders each year in advanced stages of pregnancy.

'My human right to be a test-tube single mum'

By REBECCA EVANS
With her biological clock ticking as she neared her 40th birthday, Elizabeth Pearce was becoming increasingly desperate for a child.
And with no husband on the horizon, she decided IVF was the only way to fulfil her yearning for motherhood.
The NHS at first refused to fund the treatment, which costs upwards of £3,000, as Miss Pearce was single and therefore did not meet its strict criteria.
Dream fulfilled: Elizabeth Pearce says the fact that she is single should not deprive her of her right to become a mother
Dream fulfilled: Elizabeth Pearce says the fact that she is single should not deprive her of her right to become a mother
But a year and three appeal hearings later, Ealing Primary Care Trust in West London relented after Miss Pearce, 39, threatened to invoke the Human Rights Act.
She is now the proud mother of five-month-old Leo.
On the grounds of cost, the NHS spending watchdog Nice has rationed potentially life-saving treatments such as the bowel cancer drug Avastin and liver cancer drug Nexavar – the only medicine to offer any chance of survival for patients with advanced symptoms.
But Miss Pearce, who was unable to pay for IVF privately after being made redundant from her job as a personal assistant, firmly believes that it is every woman’s human right to have a child.
She says the treatment should not be the sole preserve of those in a relationship.
During her stand-off with the West London PCT, Miss Pearce, who receives child tax credit and housing benefit, cited Articles 8 and 14 of the European Convention on Human Rights – the right to respect for family and private life and the prohibition of discrimination.
She told the Mail: ‘I believe that it is my right as a woman to be a mother. The fact that I am single is irrelevant.
The gift of life: But IVF treatment costs millions of pounds each year
The gift of life: But IVF treatment costs millions of pounds each year
‘I have wanted a child for so long and I tried to get pregnant the normal way for ten years – even when I was with men I didn’t really want to be with.
‘I got a job in an engineering company with lots of men working there as I thought I’d meet someone but it didn’t work out.
‘I contemplated adoption but as an older, single woman, my chances were virtually zero. And if I hadn’t just lost my job, then I would have paid for IVF myself. It was just bad timing.’
Miss Pearce’s case was helped by a recent law change, the Human Fertilisation and Embryology Act of 2008, which means that clinics are no longer required to take into account a child’s need for a father when considering treatment.
When she first went to her GP, she was living in a houseboat in Hayes, West London, but has now moved to a rented cottage in Canterbury.
She said: ‘When I explained to my GP that I was single, he looked at me like I was mad. He didn’t even want to consider the possibility that I’d want a child on my own, let alone that the NHS would pay for it.’
Undeterred, Miss Pearce took her case to her local PCT.
‘They didn’t want to know,’ she said.
‘The doctor told me they had a policy of not funding single women because a child has a right to a father. I was shocked. I couldn’t afford to have  private treatment and, perhaps naively, I’d assumed the NHS would fund it.
‘I know PCTs are short of funding, and some people claim that wanting a child is not a life-threatening condition, but nobody can comment until they have experienced the overwhelming urge for a child that I felt.
‘I would have spent the rest of my life feeling bitter and resentful that I wasn’t given that chance.’
In September 2009, Miss Pearce was given the go-ahead to commence treatment, which started the following June.
Miss Pearce said she would have felt bitter and resentful had she not given birth
Miss Pearce said she would have felt bitter and resentful had she not given birth
She paid £900 for sperm from an anonymous U.S. donor, of whom all she knows is that he is a mechanical engineering student who likes to play chess, the violin and basketball.
She became pregnant after the first round and gave birth to Leo in January.
Miss Pearce added: ‘In an ideal world, Leo would have had a dad in his life, but that’s not the way things worked out. It’s not like I had some glittering career and put off having a baby for selfish reasons. I’m very maternal and have always wanted a child.
‘As for the NHS paying for it, I understand it’s a sensitive issue but I truly believe single women have just as much as a right to a child as couples do.
‘Besides, plenty of couples break up after having children together, which has a dreadful effect on the child.’
Miss Pearce admits her heartache was worsened by the fact that her two sisters, Jane, 41, and Claire, 38, were both happily married with six children between them.
‘I’d be lying if I said it wasn’t hard seeing them have all the things I so desperately wanted. I really envied them.’
Miss Pearce receives support from her mother Hilary, 63, who lives nearby. She insists she has no regrets and will return to work when Leo is older. She also hopes to find a partner so that Leo can have a male role model.
‘I know that one day he will ask me who is daddy is, and I have been in touch with various donor support groups to help prepare me for this and what to say.
‘I know Leo may never know  his father, but I’ll always be  open and honest with him about how he was conceived. People say I’m a good mother and that’s all I can strive to be. I have so much love for Leo – and I honestly don’t know what I’d do without him.
‘It was a battle persuading the NHS to fund the treatment, but my persistence definitely paid off. I just want to inspire other single women to fight for a child in the same way I did.’

'Now I've had my five babies here, I want to stay'

By NICK McDERMOTT
A Nigerian woman who has cost the NHS up to £200,000 after flying into Britain while expecting quintuplets is to fight for the right to stay.
Bimbo Ayelabola, 33, who had been taking double doses of a fertility drug while in Africa, applied for a six-month visitor’s visa within days of discovering she was pregnant.
As soon as it was granted, she travelled to the UK without her husband late last year on the pretence of visiting her three sisters.
Busy An operating theatre at Homerton Hospital - one of London's busiest - where the Nigerian woman gave birth
Busy An operating theatre at Homerton Hospital - one of London's busiest - where Mrs Ayelabola gave birth
An emergency NHS scan showed she was expecting four babies.
Owing to the size and complexity of the birth, she underwent a caesarean section 32 weeks into her pregnancy on April 28.
During the procedure at Homerton Hospital in East London, doctors discovered there was a fifth child. She gave birth to two boys, Tayseel and Samir, and three girls: Aqeelah, Binish and Zara.
Although she was due to leave last week, she believes the children are too frail to travel and has instructed lawyers to seek an extension to her visitor’s visa.
The total bill to the taxpayer for Mrs Ayelabola’s care alone is expected to reach £200,000, which she is unable to pay.
Expensive: The cost of a week's hospital care for the five babies is a staggering £35,000 for the taxpayer (File photo)
Expensive: The cost of a week's hospital care for the five babies is a staggering £35,000 for the taxpayer (File photo)
The five babies were all treated in a special care unit because they were born prematurely, at a cost of £1,000 a day for each of them.
Consequently, the cost of a week’s hospital care for the family would be a staggering £35,000 for the taxpayer.
The issue has raised yet again the issue of so-called ‘health tourism’ – in which foreigners can use Britain’s state-funded health system. It is estimated to cost the NHS £200million a year.
Foreign nationals should be charged for the full cost of any treatment they receive, with most hospitals employing overseas visitor managers whose job is to identify those who must pay. But urgent treatment such as maternity care will always be provided regardless of residence status or ability to pay.
Hospitals must then take reasonable measures to recover any debts from overseas patients. Many bills are never settled, however.
And border officials repeatedly report seeing passengers arriving in an advanced state of pregnancy after securing a visitor’s visa. Around 150 cases a year are identified at Gatwick Airport.
Mrs Ayelabola, whose 37-year-old husband, Ohi, remains in Nigeria, has signed a five-figure deal with a red-top newspaper.
She said in an interview: ‘I had already had miscarriages and couldn’t bear the stress another pregnancy would cause. So I decided to visit my family in London. I thought I would stand a much better chance of avoiding another miscarriage in a calmer place with friends and family.
‘Now if I go back I’ll be on my own without even a roof over my head. My entire family support network – three sisters, four aunts and virtually all my school friends – live here.’
Mrs Ayelabola says she was unaware she was expecting as many as five children. The multiple birth is the likely result of the fertility drug Clomid, which she purchased over the counter in her home city of Lagos.
She began taking two pills a day – double the normal dose – and continued the regime for eight times longer than recommended.
Her children are being cared for with the help of her 26-year-old sister Stella, with whom she is living at a two-bedroom flat in Poplar, East London.

‘The NHS is a national health service, not an international one.'

Mrs Ayelabola, who is not entitled to any state benefits and does not have the right to work, says she is struggling to pay for her family, with nappies and milk powder alone costing her £70 a week.
Despite being born in the UK, the children do not have an automatic right to British citizenship. To qualify, they would need at least one parent who is British, or who has indefinite leave to remain in the country.
A spokesman for the Home Office said: ‘The NHS is a national health service, not an international one. We expect those with no right to be in the UK to leave voluntarily otherwise we will seek to remove them.’
The UK Border Agency can deny someone entry into the country if they believe they are seeking free healthcare. But the rules are hard to enforce. In March, the Government announced plans to tackle health tourism. Measures include preventing anyone who owes the NHS more than £1,000 from entering the country until the debt is paid off.
Last night, from behind a closed door, Mrs Ayelabola said: ‘I am not happy about what has been written about me, that is not what I told them. You need to speak to my lawyer, I do not want to comment.’
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I just want to say sorry for copping out at times and leaving Lee and friends to cope!
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I do make a lousy patient!
. If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order. . Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar. You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help. . YOU are welcome to call me if you believe I can help in ANY way. .
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Saturday 2 July 2011

14-Sept-2010 - Dr. Jason LESTER In Daily Mail on HBO & Radio Therapy Damage

14-Sept-2010 - Dr. Jason LESTER In Daily Mail on HBO & Radio Therapy Damage
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Radiotherapy saves millions from cancer but can inflict cruel damage, now, at last, there may be an answer...

Last updated at 1:31 AM on 14th September 2010

Perched on a wooden bench inside a metal tank, surrounded by people shrouded in full-face hoods with oxygen pipes, Michael Charter could have been forgiven for thinking he had stepped on to the set of a sci-fi film. 

In fact, the former publisher and businessman was in a decompression chamber receiving huge bursts of oxygen in an atmosphere twice the normal pressure - equivalent to being 40ft under the sea. 
The aim of the treatment, known as hyperbaric oxygen therapy (HBO), was to heal the internal damage caused to his bladder and bowel when he received radiotherapy for prostate cancer 17 years earlier.
Fresh hope: Michael Charter and his wife Ingka. He is having hyperbaric oxygen therapy to counter the adverse effects of radiotherapy
Fresh hope: Michael Charter and his wife Ingka. He is having hyperbaric oxygen therapy to counter the adverse effects of radiotherapy
'When my urologist suggested the therapy, I thought he was mad,' laughs Michael, 70, who lives in Devon. 'I'd never heard of it. But, as most people with significant and long- term radiotherapy damage will tell you, you will try anything to ease your symptoms.'
While radiotherapy is an effective cancer treatment - experts say it increases survival rates by about 50 per cent - it can damage healthy tissue around the tumour site.
Most vulnerable are the 12,000 patients a year who have pelvic irradiation for bowel, cervical and womb cancer, and those who are treated for head and neck cancers.
'We think that about 50 per cent of patients who undergo pelvic irradiation will suffer some radiotherapy damage,' says Dr Jason Lester, an oncologist at Velindre Cancer Centre, Cardiff.
'Some will simply suffer a change in bowel habits, but others may have distressing symptoms such as bowel ulcers, rectal bleeding, pelvic pain and a lack of bladder control. Some will need a blood transfusion, or even end up with a colostomy bag.'
Dr Lester is one of a growing number of cancer specialists referring these patients for oxygen treatment.
HBO was first used in the Thirties to treat deep-sea divers suffering from decompression sickness and trapped air bubbles (the bends) but quickly it was noted that the treatment aided wound healing.
Dr Phil Bryson, director of the Diving Diseases Research Centre in Plymouth, where Michael had his therapy, says: 'The principle behind HBO is very logical.
'We know the protein which controls cell growth and healing depends on oxygen. HBO delivers a huge amount in a short time, and research shows it stimulates this protein to work more efficiently.
'This is particularly relevant when you consider that radiotherapy damage is characterised by the death of the blood capillaries, which feed oxygen to the damaged area.'
As these capillaries die, the cells get less blood, hence less oxygen. The cells die and a wound forms. Then the cells around the edges of the wound become damaged by the inflammation and they, too, die, causing the wound to enlarge. 'It's a vicious circle and there is little medical treatment.
However, in some cases, HBO can halt or reverse that process,' says Dr Bryson.
Michael Charter was one of those to benefit. After being diagnosed with prostate cancer, aged 53, he had a biopsy and his prostate was removed in 1993. 
Radiotherapy
Bitter sweet treatment: Radiotherapy kills cancer cells but also healthy tissue around a tumour
'The cancer had spread slightly outside the prostate,' he says. 'A biopsy showed that six per cent of the surrounding tissue contained cancer cells, but that was enough for my Harley Street specialist to order a huge dose of radiotherapy.'

Then, 15 years later, Michael began to suffer symptoms.

'My first symptoms were bladder leakage,' he says. 'Then the small leaks became large leaks, and suddenly I was wetting myself. I started using pads. I'd put one on in the morning and it might be full by lunchtime. There were accidents. It was clear something was badly awry.'

Michael's GP referred him to a urologist who said his situation was probably a side-effect of the surgery - and that little could be done.

'It was depressing,' says Michael, who is married to Ingka. 'From being sociable and outgoing, suddenly I was wetting myself, often in public. It was a terrible blow to my pride and self-esteem.'
Deterioration was rapid. 

Within weeks of the first symptoms, Michael had passed blood in his urine, was suffering from painful bouts of cystitis and had bowel problems.

His urologist suggested he begin using a catheter to empty his bladder. But he still had to sleep on rubber sheets and take changes of clothes with him when he went out.

'If I'd been consulted, I would have been hesitant about such a large dose of radiotherapy'

All these symptoms are text book radiotherapy damage. Yet no one told Michael exactly why these symptoms had appeared.

'I thought I was simply living with the effects of having had cancer,' he says. 'It wasn't until I was referred to my current urologist in the autumn of 2008 that I first heard about radiotherapy damage.

'My urologist told me that today I wouldn't have been given such a large amount of radiotherapy, and that they might have adopted a watch-and-wait regime.

'That made me angry. If I'd been consulted, I would have been hesitant about such a large dose.'
Michael's story is not unique. While the damaging side-effects of radiotherapy have been recognised for decades, until recently patients weren't told of the risk. Partly this is because of concern that patients may refuse treatment if they knew the risk of damage.

This attitude has left generations of radiotherapy patients struggling to get a diagnosis - let alone treatment - for their problems. However, the bleak truth is that even when the patient is properly diagnosed there is little that clinical or pharmaceutical medicine can do to help.

'The worst aspect of the condition is that it will probably get worse,' says Dr Lester.
'Some doctors have tried rectally administering steroids to calm any inflammation.
'Others prescribe anti-diarrhoea drugs. But none of these treatments have been properly researched and, in my experience, none of them really work. Some may even make things worse.

'On the other hand, HBO therapy offers the possibility of improvement. The worst that can happen is that there is no improvement at all.'

But, because relatively low numbers of radiotherapy damaged patients have received the treatment, and no results have yet been collated, there has been no definitive research to show the oxygen therapy can help. It is a situation that many clinicians find frustrating, as it means the treatment is not recognised by NICE.

Patients who wish to use it must apply for funding on an individual basis. Fortunately, this lack of research may be about to change. In a world first, a trial carried out at the Royal Marsden Hospital in conjunction with the Institute of Cancer Research is aiming to establish whether HBO therapy does reverse symptoms.

Michael believes he already has the answer to that question. Initially denied funding by his local health authority, after the intervention of his urologist the money was found for him to attend his first course of treatment in February 2009.

'I went for 40 treatments over five weeks, and then, this year, I had a top-up of 20 treatments over two-and-a-half-weeks. Each session lasts between two and three hours, which includes three half-hour sessions of breathing pure oxygen through a hood.

'The chamber often feels warm and your ears pop as it is decompressed. There is always a medically trained attendant and usually up to nine other patients in with me.

'Each time, the results were astonishing. My bowel problems disappeared completely within days, and although I still have to use a catheter and wear pads, I'm usually dry for a night.
'To someone who has never had to use pads, it is hard to explain just how wonderful that feels.
'I am aware that, because the radiotherapy damage is continuous, the benefits of the oxygen therapy will start to wear off after time, but I am due to go for another course next year, which I hope will continue this pattern of improvement.

'HBO has given me hope that I can reverse some of the worst effects. That is a priceless gift.'
Read more: CLICK HERE
 .
 Please Be Sure To
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To Spread The Facts World Wide 
To Give Others HOPE
I Have Been Fighting Cancer since 1997 & I'M STILL HERE!
I Have Cancer, Cancer Does NOT Have Me

I just want to say sorry for copping out at times and leaving Lee and friends to cope!
Any help and support YOU can give her will be hugely welcome.
I do make a lousy patient!
.
If YOU want to follow my fight against Cancer from when it started and I first presented with symptoms see The TAB just below the Header of this Blog. called >DIARY of Cancer< just click and it will give you a long list of the main events in chronological order.
.
Thoughts and comments will be in chronological order in the main blog and can be tracked in the >ARCHIVE< in the Right Sidebar.

You may find the TABS >MEDICAL LINKS< and also >CANCER LINKS< of help.
.
YOU are welcome to call me if you believe I can help in ANY way.
.
Posted by: Greg Lance-Watkins
tel: 01291 - 62 65 62
on: http://GregLanceWatkins.Blogspot.com  
TWITTER: Greg_LW  
Health/Cancer Blog: http://GregLW.blogspot.com  
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