CONTACT DATA:

CONTACT DATA:
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Posted by: Greg Lance-Watkins
DoB: 26-Jan-1946
Chepstow, NP16 7LR, Monmouthshire, United Kingdoms.
tel: 01594 - 528 337
on: http://GregLanceWatkins.Blogspot.com

All ideas and info. provided here are to be discussed with your medical professionals. I am NOT Medically trained. I have merely had this vile disease since 1998 - always use your Common Sense and seek expert medical advice.
YOU MAY FIND THE LINKS in text and in the Right Sidebar of Help.
I can NOT vouch for any external site that I may direct readers to & therefore can NOT accept any legal responsibility - this is a personal blog of that which I believe only.
I do NOT believe there are magical cures hidden from us by our medical professionals though there are without doubt cases that seem cured as if by magic. Medical knowledge of this disease is very rudimentary and research frequently profligate but pointless!
However - sticking goji berries in your ear on a moonless night or similar WILL NOT HELP - Nor will the price paid for quackery be it here OR Mexico, Brazil or China!
There are many health care professionals trying their very best with great care and compassion but perfection is a little way off!
Be Minded:
I have cancer - cancer does not have me!

"Cowards die many times before their deaths; The valiant never taste of death but once.
Of all the wonders that I yet have heard, it seems to me most strange that men should fear;
Seeing that death, a necessary end, will come when it will come". - (Julius Caesar - Act II, Scene II).

DIARY of Cancer 02 - 2011 + VELINDRE

DIARY of Cancer 02 - 2011 + VELINDRE

For Dates & Data prior to 31-Dec-2010 CLICK HERE


 Please Be Sure To 
.Follow Greg_LW on Twitter.
Re-TWEET my Twitterings
& Publicise My Blogs 

To Spread The Facts World Wide
&
Give Hope to others
that after 13 years I am still
fighting The Pernicious Disease
THEY CAN TOO!

November 1998 - I'm damn sure I shouldn't be peeing claret!


31-Dec-2010 - 07:00hrs. Op on bladder am. By Dr. Raman. Tumour sited on stub of left Ureta entry to bladder - burnt away and captured for biopsy.
Expect possible further surgery about 4 weeks.
Discharged mid afternoon 2011-01-01

03-Jan-2010 - Unhelpful bleed Sunday - spoke to Mary D2W - then infection!

04-Jan-2011 - saw doc. Urine test - Keflex 250mg. 4 a day!

05-Jan-2011 - saw doc. With fungal infection now using Daktacort ointment.

13-Jan-2011 - feeling tired all day - C22:15hrs. Bladder discomfort and then frank mixed (no lumps) haematoria! - drink plenty and take self to bed - lets hope it stops!

18-Feb-2011 - still no hospital date rang Sue - WOOPS!!! She will sort it and call me am.

10-Feb-2011 - 11:50 Dr. Pink - seems I have CKD (Chronic Kidney Disease!) reading 47 was 54 in 2008!

16-Feb-2011 - 15:05hrs. GWENT - R.L. GOWER - not sure why I'm seeing him! He's isn't too clear on my 'stuff'. Janet took over!

17-Feb-2011 - PHONE CALL from Janet - Adam Carter wants a CT Pelvis & abdomen with contrast - Janet off next week phone Radiology direct Wed onwards!

28-Feb-2011 - CALLED Janet - CT Scan booked !

03-Mar-2011 - 12:30hrs. Neville Hall - Radiology - CT Scan -

17-Mar-2011 - 11:45hrs. Gwent - Adam CARTER - Lee came with me as I had a feeling this was NOT going to be good news and she deserved to see the pictures, hear the words and ask any questions she wanted asked - it is after all Lee who I am letting down!

WELL I WASN'T WRONG 2 visible tumours on the CT Scan in the lower abdomen - more details later!

My larger tumour is a bit like this (but this is a Squamous Cell Carcinoma on the skin!!) and just over an inch across and is the nearest lymph node to the site of the tumour on the stub of the ureter residual at the bladder from my original radical nephrectomy in September 2001.


CANCELLED by Emma on phone 22-Mar- 2011. It already seemed an impossibly long time away ;-) 31-Mar-2011 - 
REBOOKED: 

04-Apr-2011 - 10:10hrs? - Royal Gwent - Full Body Bone Scan
Be in for 09:30hrs. pick up bloods sheet from urology & see phlebotomy FIRST - the Radiography for the full skeletal scan.


06 - Apr-2011 - hrs.? - Royal Gwent (Velindra?) - Dr. Lester to discuss results, treatment & management probable rapid high dosage 
NO SIGNS of Cancer in the bones! So we move ahead ;-)

With a tumour on the uretal stump + tumours in the abdomen + bcancerous lymph nodes the prognosis is NOT good, with or without treatment it looks like months only!

14-Apr-2011 - 09:00hrs. Velindre - Nuclear Medicine to test kidney function 
Radio Active isotope Injection 2hr. wait then blood samples at 2, 3 & 4 hrs. 

18-Apr-2011 - 13:45hrs. Velindre - CONSULTANT's CLINIC - Out Patients for chemotherapy assessment

20-Apr-2011 - 13:00hrs. Velindre FIRST CHEMOTHERAPY TREATMENT!
outline - chemo 2 doses one The First Wednesday then one the next Wednesday and then a week off forms a 'cycle'.
I understand I'm having 6 or 8 'cycles' - so that is 18 or 24 weeks!  
27-Apr-2011 - 11:00hrs. Velindre FOR FULL BLOODS!


27-Apr-2011 - 14:00hrs. Velindre CHEMO TREATMENT


04-May BLANK


09-May-2011 - 14:45hrs. Velindre - Dr. Lester CLINIC
CANCELLED DUE TO COMPLICATIONS SEE THE BLOG!!
11-May-2011 - 14:00hrs. Velindre CHEMO TREATMENT
18-May-2011 - 14:10hrs. XRay Dept Velindre - SCAN -  NO Food for 4hrs. before - 1hr. before 1pt fluid18-May-2011 - 15:00hrs. Velindre CHEMO TREATMENT
25-May BLANK
?. Velindre - Dr. Lester CLINIC CT scan and the next clinic around the last week of May
01-Jun-2011 - 12:00hrs. Velindre CHEMO TREATMENT
08-Jun-2011 - 15:00hrs. Velindre CHEMO TREATMENT
16-Jun BLANK
?. Velindre - Dr. Lester CLINIC
22-Jun-2011 - 14:30hrs. Velindre CHEMO TREATMENT
29-Jun-2011 - 13:00hrs. Velindre CHEMO TREATMENT
16-Jun BLANK
?. Velindre - Dr. Lester CLINIC
13-Jul-2011 - 09:30hrs. Velindre CHEMO TREATMENT
20-Jul-2011 - 15:00hrs. Velindre CHEMO TREATMENT
28-Jul BLANK
?. Velindre - Dr. Lester CLINIC
03-Aug-2011 - 12:00hrs. Velindre CHEMO TREATMENT
10-Aug-2011 - 15:00hrs. Velindre CHEMO TREATMENT
NEW VERSION:
as of the restart due to a week delay due to blood recovery complications!

16-May-2011 - 14:30hrs. Velindre CLINIC

17-May-2011 PHONE concerningly low! 1.1 (Dr. Daniel Neims)

18-May-2011 - 11:30hrs. Velindre late check on Bloods - OK= 1.8
18-May-2011 - 14:30hrs. Velindre CHEMO TREATMENT [Day 01]

25-May-2011 01:40hrs. Alan Watkins (my Father Des Watkins DFC youngest brother) Died of Lung Cancer complications
25-May-2011 - 11:20hrs. Velindre CT SCAN
25-May-2011 - 15:00hrs. Velindre CHEMO TREATMENT [Day 08]
CANCEL Chemo Neutrophils @ 1% norm 3-5% of WBC

31-May-2011 - 14:30hrs. Lee & I were Married (Not Part of NHS Treatment!)

06-Jun-2011 - 14:30hrs. Velindre CLINIC

08-Jun-2011 - 14:30hrs. Velindre CHEMO TREATMENT [Day 01]

10-Jun-2011 10:20hrs. Alan Edward Watkins (my Father Des Watkins DFC youngest brother) FUNERAL
15-Jun-2011 - 14:00hrs. Velindre CHEMO TREATMENT [Day 08]

RePLAN SEE CLINIC 06-Jun-2011 Results = CLICK HERE
29-Jun-2011 - 13:00hrs. Velindre CHEMO TREATMENT [Day 01]
Time Change -  to 12:00hrs.
06-Jul-2011 - 13:30hrs. Velindre CHEMO TREATMENT [Day 08]
20-Jul-2011 - 09:30hrs. Velindre CHEMO TREATMENT [Day 01]
27-Jul-2011 - 12:30hrs. Velindre CHEMO TREATMENT [Day 08]
10-Aug-2011 - 13:30hrs. Velindre CHEMO TREATMENT [Day 01]
17-Aug-2011 - 15:00hrs. Velindre CHEMO TREATMENT [Day 08]  
THE RESCHEDULE:
LinAc Machine (Linear Accelerator)
for how it functions CLICK HERE

26-Jun-2011 - 09:50hrs. Velindre - RadioTherapy Planning CLINIC! 
20 Treatments!


11-Jul-2011 - 09:30hrs. Velindre - Radio Therapy Treatment


12-Jul-2011 - 15:00hrs. Velindre - Radio Therapy Treatment on m/c #LA3

13-Jul-2011 - 15:00hrs. Velindre - Radio Therapy Treatment
14-Jul-2011 - 15:00hrs. Velindre - Radio Therapy Treatment

15-Jul-2011 - 15:00hrs. Velindre - Radio Therapy Treatment

18-Jul-2011 - 11:30hrs. Velindre - Radio Therapy Review & Treatment


19-Jul-2011 - 17:15hrs. Velindre - Radio Therapy Treatment

20-Jul-2011 - 11:45hrs. Velindre - Radio Therapy Treatment

21-Jul-2011 - 14:15hrs. Velindre - Radio Therapy Treatment

22-Jul-2011 - 13:30hrs. Velindre - Radio Therapy Treatment

25-Jul-2011 - 10:45hrs. 12:00hrs. (much better ;-) Velindre - MRI Scan
MRI Scanner (Magnetic Resonance Imager)
For more see Right Sidebar Link

25-Jul-2011 - 15:00hrs. Velindre - Radio Therapy Review & Treatment

26-Jul-2011 - 15:00hrs. Velindre - Radio Therapy Treatment CLICK HERE

27-Jul-2011 - 15:00hrs. Velindre - Radio Therapy Treatment

28-Jul-2011 - 15:00 16:45hrs. Velindre - Radio Therapy Treatment

29-Jul-2011 - 13:45hrs. Velindre - Radio Therapy Treatment

01-Aug-2011 - 14:45 Velindre - Radio Therapy Review & Treatment

02-Aug-2011 - 14:45 Velindre - Radio Therapy Treatment

03-Aug-2011 - 14:45 Velindre - Radio Therapy Treatment

04-Aug-2011 - 14:45 Velindre - Radio Therapy Treatment

05-Aug-2011 - 14:45 Velindre - Radio Therapy Treatment

12-Aug-2011 - 15:15 Velindre - appt.: Dr. Lester re.: MRI Results (CLICK HERE)

14-Oct-2011 - 14:30 Velindre - appt.: Dr. Lester re.: Treatment Outcomes CLICK HERE

31-Oct-2011 - 13:00 Royal Gwent - appt.: Flexi (Flexible Cystoscopy) 

07-Dec-2011 - 14:30 Velindre appt.: CT Scan CLICK HERE

09-Dec-2011 - 14:00 Velindre - appt.: Dr. Lester re: Out Patients CLICK HERE

09-Mar-2012 - 13:10 Velindre - appt.: CT Scan CLICKHERE

16-Mar-2012 - 14:30 Velindre - appt.: Dr. Lester re: Out Patients

01-May-2012 - 13:30 Royal Gwent - appt: Flexi (Flexible Cystoscopy) 

03-Aug-2012 - Anti Biotics as first step for 'frank Haematuria'   

16-Aug-2012 - 14:15 Royal Gwent - appt.: Flexi (Flexible Cystoscopy)

24-Aug-2012 - 13:40hrs. Royal Gwent - Report starved etc. for theater!

07-Sep-2012 - Biopsy results letter dated 04-Sep-2012 shows ALL CLEAR

14-Sep-2012 - 11:40 Velindre - appt.: CT  scan

21-Sep-2012 - 14:00 Velindre - appt.: Dr. Lester re: Out Patients 

19-Nov-2012 - HEART ATTACK > Royal Gwent!!
22-Nov-2012 - Royal Gwent CCU - Angioplast
23-Nov-2012 - Royal Gwent discharged.

30-Nov-2912 - 16:50hrs. GP appt. to adjust meds. + flu jab.

01-Dec-2012 - felt rough + frank haematuria through night!

02-Dec-2012 - spoke duty sister @ Velindre.

04-Dec-2012 left message for Huw Davies GP
05-Dec-2012 GP phoned feels it is OK and meds cause bleed, flu jab caused malaise.

06-Dec-2012 spk to Velindre & updated them + spk. Dr. Thomas Registrar @ Velindre.

14-Dec-2012 - early hours mild haematuria! having felt unwell late evening!

28-Dec-2012 - 10:10hrs. Bloods @Sedbury
04-Jan-2013 - 09:20hrs. Dr. Huw Davis GP appt @Sedbury

09-Jan-2013 - 11:40hrs. GP appt GP @Chepstow (Dr. Kirsty Laval) with frank haematuria!
10-Jan-2013 - 14:00hrs. Royal Gwent appt. Flexi clinic
10-Jan-2013 - 19:00hrs. Royal Gwent Emergency admission
12:-Jan-2013 - 16:30hrs. bleed controlled - discharged
15-Jan-2013 - 16:00hrs. bleed returns!
16-Jan-2013 - 19:30hrs. Royal Gwent Emergency admission
27-Jan-2013 -15:30hrs. bleed controlled - discharged


07-Mar-2013 - 10:20 Royal Gwent - appt.: Adam Carter? re: Urology Out Patients
15-Mar-2013 - 13:30 Velindre - appt.: Dr. Lester re: Out Patients 
.
Posted by: Greg Lance-Watkins
Tel.: 01594 - 528 337
of: Greg_L-W@BTconnect.com  
DO MAKE USE of LINKS & >Right Side Bar<
Also:
Details & Links: http://GregLanceWatkins.Blogspot.com  
General Stuff: http://gl-w.com  
Health Blog.: http://GregLW.blogspot.com  
TWITTER: Greg_LW
 
 Please Be Sure To 
.Follow Greg_LW on Twitter.
Re-TWEET my Twitterings
& Publicise My Blogs 

To Spread The Facts World Wide
&
Give Hope to others
that after 13 years I am still
fighting The Pernicious Disease
THEY CAN TOO!
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